We just got back from our cleft appointment and the short story is that we need to admit to the hospital again on Monday morning for more pre-operative checks. It will be a pain in the butt, admitting is never fun. We have to be there at 10am, and I bet we won't see a doctor until after 4pm at the very earliest. I would love to be surprised but will not be holding my breath.
Since Maddy's spine is now clear, the one last hurdle to jump before surgery is her airway issues. In this hospital visit, we will meet with both the anesthetist and the ENT to discuss these issues. She may need a bronchoscopy before surgery, or they may clear her for surgery on Monday. I'm not sure which. If she is good to go, surgery might be within the next month. If she needs a bronchoscopy first, it will probably delay surgery by another few weeks, assuming that everything is clear.
So we just have the weekend to wait and wonder - it also happens to be our wedding anniversary, and we are having our first ever night away from the kids. I'm going to be trying hard not to think about it!! There's nothing that I can do about it anyway, and besides, I'm sure I'll have plenty of time to think on Monday when I'm hanging around at the hospital...
I'll be thinking of you guys! I hope she gets the green light for surgery. Once she gets the cleft fixed, she won't have any other medical issues to contend with right now, will she?
ReplyDeleteWell she currently does have some orthopedic issues that we are keeping an eye on - but surgery is not yet necessary for those. This is the only surgery we're currently waiting for. She'll always need plenty of different follow ups though.
ReplyDeleteSo close! I'll be praying that you get a date for surgery soon and that every last question mark is answered.
ReplyDeleteEnjoy your special time with your Hubby! I will continue to pray for beautiful Maddy! Hugs being sent your way from Long Island! Xoxo
ReplyDeleteI just found your blog. My son also has dd but a very mild form. He was born August 2 2010. He and your daughter are so close in age I thought it would be interesting to see how their cases develop. Hope the coming medical procedures turn out well. We're are from the US. I'll be following!
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