tag:blogger.com,1999:blog-8207455552139284342.post4958695567317073331..comments2024-01-24T08:47:26.674+08:00Comments on Faith, Hope and Joy: One Week Old :)Nicolehttp://www.blogger.com/profile/10147429806244730166noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-8207455552139284342.post-48963637433585563572010-08-11T20:55:16.051+08:002010-08-11T20:55:16.051+08:00I found your blog through someone else on a specia...I found your blog through someone else on a special needs board. Although our son has a heart defect, his main problem was airway issues caused by the heart defect. They thought he had tracheal malacia, but it turns out it was bronchial malacia. Either way, what you describe sounds just like what we were dealing with. He was on a ventilator, c-pap, high flow, and then eventually came home on oxygen. He is now 17 months old and doing quite well. You can contact me at krhansen1996@yahoo.com if you want to connect. I am a NICU veteran...99 days! Your little one is adorable!!<br><br>KarinKarinhttp://www.blogger.com/profile/07184355749277782777noreply@blogger.comtag:blogger.com,1999:blog-8207455552139284342.post-22920716511076698902010-08-11T23:53:53.620+08:002010-08-11T23:53:53.620+08:00Happy 1 week old, Maddy!Happy 1 week old, Maddy!elaine eenoreply@blogger.comtag:blogger.com,1999:blog-8207455552139284342.post-3850429029948479082010-08-12T11:37:27.640+08:002010-08-12T11:37:27.640+08:00Glad she's doing so well! Sounds like she won...Glad she's doing so well! Sounds like she won't be needing that CPAP much longer! If they figure out what causes the wheezing, let me know, Grant outgrew it before we ever found out. We have a pediatric neurosurgeon that evaluates Grant's neck, do they have anything like that there? It also might be good to get an LP specialist to take a look at her neck because they've actually seen it before and would be able to tell you how severe it is compared to others like her. Hope she gets to come home soon!Nate and Stacey Stonehttp://www.blogger.com/profile/02807640778917346516noreply@blogger.com